Focus on the Family

I don’t know what to call it - or how to put this.  I have tried in so many different ways.  We’ve been having quite a time of life lately…..Johnathan has now been unwell for nine weeks.

With regards to Kevin and I, we have been used to being disabled our whole lives.  He learned to accept his condition from a very young age, whereas I fought and tried to ignore the truth that life was a struggle and I wasn’t truly living the best life I could.  After I met Kevin and started learning how to begin accepting myself, I thought I had done a pretty good job of it.

However, last year I broke my hand and ended up in hospital for nine weeks…goodness, the same time Johnathan has been ill this year…how bizarre is that?!  For as long as I can remember, falls have been a major part of my life and when I came home, I had to agree to have carers come in four times a day to help me.  Well, I wasn’t impressed at the thought, at all!  In fact, I intended to cancel them as soon as I could (after the four weeks I had agreed to with the staff in hospital).

But as I started to settle back in at home, I began to realise that actually, I NEEDED the help and admit that I really wasn’t able to cope, the falls were getting worse and as I am getting older the impact on my body is increasing.  The help wasn’t just optional, it is essential for the wellbeing of our family.

At the moment we are working on diagnosis by elimination for Johnathan and as we tick more of them off, we are getting closer to whatever the answer is.  We just need to give it more time.